Tuesday, May 25, 2010

Lady Gaga

So Lady Gaga may have lupus. Apparantly she has been tested for it and lupus complications were the cause of her Aunt's death. I hope for her sake she does not, but hopefully this will provide some much needed exposure for the disease.

One thought on the situation, she states that she has not announced the results because she does not want her fans to be worried.

While this is obviously a very private matter one can only hope that if she does indeed have lupus that Gaga steps up to the plate for all the PALs (People Affected by Lupus) out there and helps put a public face a misunderstood disease.

Tuesday, May 18, 2010

Miss Oklahoma

So apparantly Miss Oklahoma caused a bit of a stir amongst the lupus community due to some comments she made at the Miss America Pageant the other night. While I did not see it live, I have been informed by some people on Twitter (www.twitter.com/Alliance4Lupus) that she said that through the grace of God she was cured of lupus.

Not surprisingly this caused a minor outroar because as we know, there is currently no cure for lupus. The fact is she had drug induced lupus and therefore once she stopped taking the offending drug, her symptoms disappeared. She should have made this much more clear. As it was, she left many people who probably were completely unfamiliar with lupus with the faulty idea that it could be cured.

Here is a link to an interview she did where she mentions lupus.

Thursday, May 6, 2010

Lupus DVD Trilogy

Fantastic new dvd trilogy on lupus is now out. Visit Living Through Dying and take a look.

Monday, April 19, 2010

Happy Birthday!

To me! Wow, what an outpouring of love from all my PALs (People Affected by Lupus) on my Facebook page. Thank you so very much for all the kind wishes!

Wednesday, March 31, 2010

The fantastic Mr. Geoff Thomas out of Australia a tireless supporter of all PALs (People Affected by Lupus) has just launched the Lupus Magazine. I have taken a look and it is superb!

Thursday, February 18, 2010

My sister just gave birth to a healthy baby girl, Anna Langston Rogers (same middle name as me!). It got me thinking about the difficulties of pregnancy for those with lupus. I went to the Alliance for Lupus Research's Facebook fan page and saw some great posts on the topic. Second post down as of this blog post.