My 30 year old daughter was diagnosed in May '09. She is a single mom of 3 boys and all of them live with me.These boys need her. She needs to watch them grow up and give her grandchildren. It tears me apart to watch her go from this vibrant young woman to someone who is in constant, daily pain. My grandsons have become used to her being on the couch not able to walk much. She can't take them to the park.They don't understand and I don't know how to tell them. All they know is the Mommy is sick again and that Mommy is in the hospital again.We NEED a cure. For everyone's sake.
Why do we need to find a cure for lupus?
Tuesday, March 31, 2009
Friday, March 27, 2009
Wednesday, March 25, 2009
Supporting Lupus Research!
This is my roommates kitten Roland. If you look closely you can see he is playing with an ALR bracelet. It is tied to a string and hangs on a rod. It is his favorite toy. Roland supports the ALR and lupus research. So should you!Friday, March 20, 2009
Jessica's Reason for Why We Must Cure Lupus
Just read the post, My Teacher, My Hero by Jessica Pajaron over at http://walk.lupusresearch.org/site/News2?page=NewsArticle&id=11821&news_iv_ctrl=1061
and I was honestly moved. Here's a sample where Jessica is talking about her teacher who suffers from lupus:
She holds our problems as she withstands her own. She is my hero and my inspiration. She never once has put herself first.
I am sure her teacher is proud. You go Jessica!
and I was honestly moved. Here's a sample where Jessica is talking about her teacher who suffers from lupus:
She holds our problems as she withstands her own. She is my hero and my inspiration. She never once has put herself first.
I am sure her teacher is proud. You go Jessica!
Thursday, March 12, 2009
Japanese Rugby!!!
Did you know Lupus means wolf in Japanese (so the internet told me) and there is a Japanese rugby team named the Toshiba Brave Lupus!
Your Fundraising Money for the ALR At Work
Genes and Genetic Pathways that Supress Lupus
Edward K. Wakeland, PhD - University of Texas Southwestern Medical Center - Dallas, Texas
Summary: Dr. Wakeland will use a new breed of lupus-prone mice to identify a gene, called Sles1, that suppresses the development of systemic autoimmunity and fatal lupus nephritis (kidney disease). The Sles1 gene does not affect normal immune functions, but specifically suppresses the development of autoimmune responses similar to those that occur in people with SLE. Dr. Wakeland and his colleagues have already localized the Sles1 gene to a very small region of the genome and will now use a variety of genetic strategies to specifically identify its exact location. They will then pinpoint the particular molecular pathways and immune mechanisms that the gene causes to suppress fatal lupus in mice.
What this study means for people with lupus: Identifying the Sles1 gene in mice and finding the molecular and cellular processes that it influences should provide new targets for lupus therapies and may lead to the development of drugs that can suppress the disease without impairing the immune system’s normal functions.
Edward K. Wakeland, PhD - University of Texas Southwestern Medical Center - Dallas, Texas
Summary: Dr. Wakeland will use a new breed of lupus-prone mice to identify a gene, called Sles1, that suppresses the development of systemic autoimmunity and fatal lupus nephritis (kidney disease). The Sles1 gene does not affect normal immune functions, but specifically suppresses the development of autoimmune responses similar to those that occur in people with SLE. Dr. Wakeland and his colleagues have already localized the Sles1 gene to a very small region of the genome and will now use a variety of genetic strategies to specifically identify its exact location. They will then pinpoint the particular molecular pathways and immune mechanisms that the gene causes to suppress fatal lupus in mice.
What this study means for people with lupus: Identifying the Sles1 gene in mice and finding the molecular and cellular processes that it influences should provide new targets for lupus therapies and may lead to the development of drugs that can suppress the disease without impairing the immune system’s normal functions.
Why We Must Find A Cure For Lupus Now
Originally posted at http://www.facebook.com/topic.php?topic=8838&post=113783&uid=44101039807#post113783
Jennifer Desmond-Hall (Lansing / East Lansing, MI)
My name is Jennifer Hall and I am 34 years old.. I was diagnosed with Lupus in 2006. However, I believe I have had it much longer. I want to find a cure for Lupus, so I can be active in my childrens lives. I have missed school plays, Christmas mornings with my children opening their gifts. Those were heartbreaking moments as I sat in my hospital room, wondering what my future held. This disease attacks anything and everything. I have walked for ALR in Detroit for the last two years. I love ALR because 100% of all money goes to research. I pray that one day, there will be a cure, not just for Lupus, but many other awful diseases.
Jennifer Desmond-Hall (Lansing / East Lansing, MI)
My name is Jennifer Hall and I am 34 years old.. I was diagnosed with Lupus in 2006. However, I believe I have had it much longer. I want to find a cure for Lupus, so I can be active in my childrens lives. I have missed school plays, Christmas mornings with my children opening their gifts. Those were heartbreaking moments as I sat in my hospital room, wondering what my future held. This disease attacks anything and everything. I have walked for ALR in Detroit for the last two years. I love ALR because 100% of all money goes to research. I pray that one day, there will be a cure, not just for Lupus, but many other awful diseases.
Wednesday, March 11, 2009
Great Blog!
Just wanted to give a quick shout out to the blog, Despite Lupus, which can be found here http://despitelupus.blogspot.com/ I urge everyone to check it out. Some really great stuff.
Tuesday, March 10, 2009
Cure Lupus Now
Check out this great post by Joyce to the question posed at http://www.facebook.com/topic.php?topic=8838&post=113527&uid=44101039807#post113527
"Why is it so important to you that we find a cure to lupus now"
Hi! I'm Joy and have had SLE Lupus since 1991 and I want a cure for Lupus so that I am able to help others when they need it and not have to cancel because I am sick.I have been affected by Lupus with severe fatigue,joint pain,pleurisy and lung involvement, some slight kidney involvement and CNS with lots of pain. If there was a cure I could go hiking which I loved.It is physically and emotionally a total drain of oneself. and we all get very discouraged but we are tough and will keep fighting the disease. We are fighters of Lupus but even fighters get weary. Please help us cure this disease. My dream is to be able to help others more and be able to completely clean my house without having to sleep like Rip Van Winkle!
"Why is it so important to you that we find a cure to lupus now"
Hi! I'm Joy and have had SLE Lupus since 1991 and I want a cure for Lupus so that I am able to help others when they need it and not have to cancel because I am sick.I have been affected by Lupus with severe fatigue,joint pain,pleurisy and lung involvement, some slight kidney involvement and CNS with lots of pain. If there was a cure I could go hiking which I loved.It is physically and emotionally a total drain of oneself. and we all get very discouraged but we are tough and will keep fighting the disease. We are fighters of Lupus but even fighters get weary. Please help us cure this disease. My dream is to be able to help others more and be able to completely clean my house without having to sleep like Rip Van Winkle!
Friday, March 6, 2009
Suzuki Owner's Club of North America to Ride for the ALR
Local business working to encourage, support motorcycle safety awareness
by Andrea Schneider
Stone Anthony, President and founder of the Suzuki Owners Club of North America (SOC), along with Joe Summers, Treasurer of the SOC Veterans Rider Group accepted a trailer donated by Homesteader, Inc. to be used on their Safety Awareness Tour of Tennessee. Anthony and Summers are pictured here with Dion and Anthony Mountain in front of the trailer Homesteader donated to the cause.
NEW TAZEWELL—Homesteader, Inc. will be supporting motorcycle safety awareness as one of the sponsors for the Suzuki Owners Club of North America’s (SOC) safety awareness tour of Tennessee.The SOC, an organization of Suzuki Brand motorcycle enthusiasts, is presenting an event called the 2009 Tennessee Roadway Safety Awareness Tour.The tour will consist of 76 cities in 76 days. According to information from the group’s official website www.suzukiownersclub.org, “The focus of the tour is to get everyone on the road to be attentive to motorcyclists, as well as other vulnerable road users when many more riders are taking to the streets. The more important part of this effort is to increase awareness among the non-riding majority.”Beginning on March 2, 2009 the SOC will be touring the state of Tennessee stopping at various locations in cities across the state. The tour will stop at a variety of different venues including Suzuki dealers, Homesteader Inc. dealerships, and Advance Auto Parts stores, to name a few.The tour will stop in Claiborne County at the Homesteader, Inc. dealership on May 4 and will be at that location from 10 a.m. until 4 p.m.At each stop the SOC will be selling tickets for a two giveaway bikes. Tickets will be sold for a chance to win one of two 2009 Suzuki C109RT motorcycles. The two giveaway bikes will be transported from city to city in a trailer donated by Homesteader, Inc. The trailer will also house two vintage Harley Davidson bikes. All the proceeds from giveaway ticket sales will be divided for various funds including the Alliance for Lupus Research, American Red Cross (Tennessee Chapters), the Wheels through Time Motorcycle Museum, Motorcycle Awareness Foundation of Tennessee, Bikers against Child Abuse, and the SOC. For more information on the tour visit the SOC official website at www.suzukiownersclub.org and click the “Cruising for Awareness” link.
view the original story here:
http://www.claiborneprogress.net/pages/full_story?page_label=home_top_stories_news&id=2021976-Local+business+working+to+encourage%2C+support+motorcycle+safety+awareness&widget=push&article-Local%20business%20working%20to%20encourage,%20support%20motorcycle%20safety%20awareness%20=&instance=secondary_news_left_column&open=&#cb_post_comment_2021976
by Andrea Schneider
Stone Anthony, President and founder of the Suzuki Owners Club of North America (SOC), along with Joe Summers, Treasurer of the SOC Veterans Rider Group accepted a trailer donated by Homesteader, Inc. to be used on their Safety Awareness Tour of Tennessee. Anthony and Summers are pictured here with Dion and Anthony Mountain in front of the trailer Homesteader donated to the cause.
NEW TAZEWELL—Homesteader, Inc. will be supporting motorcycle safety awareness as one of the sponsors for the Suzuki Owners Club of North America’s (SOC) safety awareness tour of Tennessee.The SOC, an organization of Suzuki Brand motorcycle enthusiasts, is presenting an event called the 2009 Tennessee Roadway Safety Awareness Tour.The tour will consist of 76 cities in 76 days. According to information from the group’s official website www.suzukiownersclub.org, “The focus of the tour is to get everyone on the road to be attentive to motorcyclists, as well as other vulnerable road users when many more riders are taking to the streets. The more important part of this effort is to increase awareness among the non-riding majority.”Beginning on March 2, 2009 the SOC will be touring the state of Tennessee stopping at various locations in cities across the state. The tour will stop at a variety of different venues including Suzuki dealers, Homesteader Inc. dealerships, and Advance Auto Parts stores, to name a few.The tour will stop in Claiborne County at the Homesteader, Inc. dealership on May 4 and will be at that location from 10 a.m. until 4 p.m.At each stop the SOC will be selling tickets for a two giveaway bikes. Tickets will be sold for a chance to win one of two 2009 Suzuki C109RT motorcycles. The two giveaway bikes will be transported from city to city in a trailer donated by Homesteader, Inc. The trailer will also house two vintage Harley Davidson bikes. All the proceeds from giveaway ticket sales will be divided for various funds including the Alliance for Lupus Research, American Red Cross (Tennessee Chapters), the Wheels through Time Motorcycle Museum, Motorcycle Awareness Foundation of Tennessee, Bikers against Child Abuse, and the SOC. For more information on the tour visit the SOC official website at www.suzukiownersclub.org and click the “Cruising for Awareness” link.
view the original story here:
http://www.claiborneprogress.net/pages/full_story?page_label=home_top_stories_news&id=2021976-Local+business+working+to+encourage%2C+support+motorcycle+safety+awareness&widget=push&article-Local%20business%20working%20to%20encourage,%20support%20motorcycle%20safety%20awareness%20=&instance=secondary_news_left_column&open=&#cb_post_comment_2021976
Monday, March 2, 2009
Great Facebook Group
Really super group I stumbled upon over on Facebook, Kristine's Alliance for Lupus Research page. Check it out!
http://www.facebook.com/group.php?sid=690f16c5e7adc5ccc80788069687ddd1&gid=36992581958
http://www.facebook.com/group.php?sid=690f16c5e7adc5ccc80788069687ddd1&gid=36992581958
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