Showing posts with label autoimmune. Show all posts
Showing posts with label autoimmune. Show all posts

Thursday, May 6, 2010

Lupus DVD Trilogy


Fantastic new dvd trilogy on lupus is now out. Visit Living Through Dying and take a look.

Monday, April 19, 2010

Happy Birthday!

To me! Wow, what an outpouring of love from all my PALs (People Affected by Lupus) on my Facebook page. Thank you so very much for all the kind wishes!

Thursday, December 10, 2009

Brand New! Faces of Lupus II


Click on the image above to view the brand spanking new Faces of Lupus video presented by the Alliance for Lupus Research is now officially out! Please share it with any and everyone. You never know whose life you could touch.

Tuesday, September 22, 2009

Lupus and Misconception...

What are the most common misconceptions you encounter when dealing with lupus??? I am sure 'but you don't look sick,' get's very old and very frustrating. The invisible illness at times indeed. How do you comprehensively explain your fatigue to someone who has never experienced it?

Hey Atlanta!

The ALR needs your help for the ALR Walk with Us to Cure Lupus Walkathon on Saturday, October 24th at 9 AM taking place at Highwoods Century Center. Please contact mroberts@lupusresearch .org.

Friday, September 4, 2009

Faces of Lupus

Soooo...the Alliance for Lupus research is working on a new Faces of Lupus video to be rolled out in three parts via the web. With the great success of the last one I think we can expect something really special. If you never checked out the first one click here to view.

Monday, August 24, 2009

Acts of Kindness

Kansas City woman donates kidney to neighbor
A woman suffering from lupus needed a new kidney. She was in luck.

Wednesday, August 19, 2009

Tuesday, August 4, 2009

She May Have Lupus, But Lupus Does Not Have Her

Check out the awesome Poquette's. They continue to inspire.

Living with Lupus

Tuesday, July 21, 2009

Potential New Drug to Treat Lupus

A new Human Genome study provides some very ecouraging news. Check out the full article in the Wall Street Journal.

Friday, June 19, 2009

Why NEFE MARTIN Walks for the ALR

"I walk for lupus because it has affected my life drastically. My sister past away from Lupus Septmeber 3, 2007. She was 28 years old. The youngest person in the dialysis center. She was fighting her battle with Lupus for a 7 years, and it was just a little stronger than her. She is gone, She left 2 small children age 6 and 7 behind, and my mother ... Read Moreis heartbroken over losing her. When she past i wanted to die too. So I plan on fighting her battle for her until my demise. I will do the ALR walk in NYC every October. Rain or Shine. I dont need to be featured on here or myspace or anything. I think the people are most deserving are the people actually living with Lupus. Just wanted you to know that you dont have to have Lupus to be affected by it"

Wednesday, May 13, 2009

Dogs and Lupus


Dogs can have some types of lupus lupus. Who knew? Click here for the full story.


And above is a picture I found of a guy named Lupus. For real.

Tuesday, May 12, 2009

Former NFL Player Supports Lupus Research


Check out his truly great Eddie Kennison Foundation here.

"Walk with Us to Cure Lupus!" 5/16/09, 9AM, THEIS PARK, KC.



Thursday, April 30, 2009

News Anchor Brenda Blackmon Supports the ALR

This is just awesome. News anchor Branda Blackmon talks about lupus, the ALR and the importance of the simple task of asking for help. Click here for the full story.

Tuesday, April 28, 2009

Matching Gifts Made Easy

Super easy new matching gift feature from the ALR. Check it out here!

Monday, April 13, 2009

Erika's Crew from Connecticut Rocks!

Ansonia to host 5K walk for lupus research

Laura Poquette says she's pleased she and her daughter, Erika Poquette, 18, are able to bring the second annual 5K walk for the Alliance for Lupus Research to the Valley.

"We're glad we can hold the walk at Nolan Field this year," Laura Poquette said. "Last year, we held it in a more central location in the state, but it seemed most of the people there were from the Valley, so we changed the location."

The walk will step off at 10 a.m. June 27 at the track at Jarvis Field in the Nolan Sports Complex, 350 Wakelee Ave. Check-in starts at 9 a.m. The 5K (3.1-mile) walk around the track will be held rain or shine.

click here for the full story

Wednesday, April 8, 2009

The ALR on Facebook...

With YOUR help has surpassed 500 fans! Let's continue to spread the word. And as the blog title says, Together, we will find a cure!

ALR Facebook Page

Wednesday, April 1, 2009

April Declared Lupus Alert Month

The Pennsylvania House of Representatives voted unanimously to approve this resolution.
Click here for full story.

And in additional news April also happens to be the month of my birth!

Wednesday, March 25, 2009

Supporting Lupus Research!

This is my roommates kitten Roland. If you look closely you can see he is playing with an ALR bracelet. It is tied to a string and hangs on a rod. It is his favorite toy. Roland supports the ALR and lupus research. So should you!

Tuesday, March 10, 2009

Cure Lupus Now

Check out this great post by Joyce to the question posed at http://www.facebook.com/topic.php?topic=8838&post=113527&uid=44101039807#post113527

"Why is it so important to you that we find a cure to lupus now"

Hi! I'm Joy and have had SLE Lupus since 1991 and I want a cure for Lupus so that I am able to help others when they need it and not have to cancel because I am sick.I have been affected by Lupus with severe fatigue,joint pain,pleurisy and lung involvement, some slight kidney involvement and CNS with lots of pain. If there was a cure I could go hiking which I loved.It is physically and emotionally a total drain of oneself. and we all get very discouraged but we are tough and will keep fighting the disease. We are fighters of Lupus but even fighters get weary. Please help us cure this disease. My dream is to be able to help others more and be able to completely clean my house without having to sleep like Rip Van Winkle!