Vanity (Poem about Lupus) Live at Spoken Funk

Lady Gaga

So Lady Gaga may have lupus. Apparantly she has been tested for it and lupus complications were the cause of her Aunt's death. I hope for her sake she does not, but hopefully this will provide some much needed exposure for the disease.

One thought on the situation, she states that she has not announced the results because she does not want her fans to be worried.

While this is obviously a very private matter one can only hope that if she does indeed have lupus that Gaga steps up to the plate for all the PALs (People Affected by Lupus) out there and helps put a public face a misunderstood disease.

Miss Oklahoma

So apparantly Miss Oklahoma caused a bit of a stir amongst the lupus community due to some comments she made at the Miss America Pageant the other night. While I did not see it live, I have been informed by some people on Twitter (www.twitter.com/Alliance4Lupus) that she said that through the grace of God she was cured of lupus.

Not surprisingly this caused a minor outroar because as we know, there is currently no cure for lupus. The fact is she had drug induced lupus and therefore once she stopped taking the offending drug, her symptoms disappeared. She should have made this much more clear. As it was, she left many people who probably were completely unfamiliar with lupus with the faulty idea that it could be cured.

Here is a link to an interview she did where she mentions lupus.

Lupus DVD Trilogy

Fantastic new dvd trilogy on lupus is now out. Visit Living Through Dying and take a look.

Happy Birthday!

To me! Wow, what an outpouring of love from all my PALs (People Affected by Lupus) on my Facebook page. Thank you so very much for all the kind wishes!

The fantastic Mr. Geoff Thomas out of Australia a tireless supporter of all PALs (People Affected by Lupus) has just launched the Lupus Magazine. I have taken a look and it is superb!

The Lupus Magazine

My sister just gave birth to a healthy baby girl, Anna Langston Rogers (same middle name as me!). It got me thinking about the difficulties of pregnancy for those with lupus. I went to the Alliance for Lupus Research's Facebook fan page and saw some great posts on the topic. Second post down as of this blog post.

http://www.facebook.com/allianceforlupusresearch

Waging War Against Lupus

Karen Birney is a trooper and this article about lupus featuring her shows why. Good stuff!

The Return of Roland the Cat!

Roland whose favorite toy is his Alliance for Lupus Research Lupus Awareness Bracelet (see here) was feeling very sad after he broke it due to excessive playing here you can see the result of his rambuctiousness and his pouty face right after...

Brand New! Faces of Lupus II

Click on the image above to view the brand spanking new Faces of Lupus video presented by the Alliance for Lupus Research is now officially out! Please share it with any and everyone. You never know whose life you could touch.

The ALR One Love, One Cause Gala 2009

Taken from the Alliance for Lupus Facebook fan page

The Alliance for Lupus Research (ALR) held its annual One Love One Cause gala celebration in honor of its tenth anniversary on November 18, 2009. The evenings co-chairs Robert Wood Johnson IV, Chairman & CEO New York Jets, Robert W. Pittman, Chairman & Founder Pilot Group, LLC, Barry M. Meyer, Chairman & CEO Warner Brothers, and Vivi Nevo, President NV Investments, Inc. came together in honor of Richard Parsons, Chairman of Board, Citigroup Inc. The master of ceremonies for the evening was Maurice Dubois, Co-Anchor, WCBS-TV. Special guests included Heidi Klum, top fashion model and host of the Project Runway Show. A highlight of the evening was the ALR’s unveiling of its new Faces of Lupus video which will be available soon to be viewed by the public.

Wow, even Heidi Klum showed up to give her support to the ALR and lupus research!

Breaking News!

Just got this from the Alliance for Lupus Research....New Study Findings Represent a Critical Step Forward for People with Lupus Everywhere

Lupus and Misconception...

What are the most common misconceptions you encounter when dealing with lupus??? I am sure 'but you don't look sick,' get's very old and very frustrating. The invisible illness at times indeed. How do you comprehensively explain your fatigue to someone who has never experienced it?

Hey Atlanta!

The ALR needs your help for the ALR Walk with Us to Cure Lupus Walkathon on Saturday, October 24th at 9 AM taking place at Highwoods Century Center. Please contact mroberts@lupusresearch .org.

Brand Spanking New ALR Walk Web Site

Check it out. Sign up. Get involved. :)

Alliance for Lupus Research

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Faces of Lupus

Soooo...the Alliance for Lupus research is working on a new Faces of Lupus video to be rolled out in three parts via the web. With the great success of the last one I think we can expect something really special. If you never checked out the first one click here to view.

Acts of Kindness

Kansas City woman donates kidney to neighbor
A woman suffering from lupus needed a new kidney. She was in luck.

Gotta Love Chicago's Own The Blissters

Rockin out for a cure...

Bad News Bear and Lupus...

So I posted the following on my Twitter account...

ALRtweets: 1 of the kids N Bad News Bears is calld Lupus...inappropriate? funny? offensive? a combination? wht do U think...I am curious

I found the answers interesting. Here is a sampling of responses from Twitter and Facebook...

-That is so not funny or appropriate. If they had lupus, they would not joke about it.
-its combo of both but I'm not surprised because comedies satirically poke at every1 and everything...
-I say that ANYTHING that brings awareness to Lupus- GO FOR IT! lol There's not enough out there, despite us all trying hard to get it to be! I don't think there's anything wrong with something good coming of something bad

Not having lupus, I feel like it is hard for me to say what I may or may not find offensive. The conversation however is a good one.

She May Have Lupus, But Lupus Does Not Have Her

Check out the awesome Poquette's. They continue to inspire.

Living with Lupus