My 30 year old daughter was diagnosed in May '09. She is a single mom of 3 boys and all of them live with me.These boys need her. She needs to watch them grow up and give her grandchildren. It tears me apart to watch her go from this vibrant young woman to someone who is in constant, daily pain. My grandsons have become used to her being on the couch not able to walk much. She can't take them to the park.They don't understand and I don't know how to tell them. All they know is the Mommy is sick again and that Mommy is in the hospital again.We NEED a cure. For everyone's sake.
Why do we need to find a cure for lupus?
Tuesday, March 31, 2009
Friday, March 27, 2009
Wednesday, March 25, 2009
Supporting Lupus Research!
This is my roommates kitten Roland. If you look closely you can see he is playing with an ALR bracelet. It is tied to a string and hangs on a rod. It is his favorite toy. Roland supports the ALR and lupus research. So should you!Friday, March 20, 2009
Jessica's Reason for Why We Must Cure Lupus
Just read the post, My Teacher, My Hero by Jessica Pajaron over at http://walk.lupusresearch.org/site/News2?page=NewsArticle&id=11821&news_iv_ctrl=1061
and I was honestly moved. Here's a sample where Jessica is talking about her teacher who suffers from lupus:
She holds our problems as she withstands her own. She is my hero and my inspiration. She never once has put herself first.
I am sure her teacher is proud. You go Jessica!
and I was honestly moved. Here's a sample where Jessica is talking about her teacher who suffers from lupus:
She holds our problems as she withstands her own. She is my hero and my inspiration. She never once has put herself first.
I am sure her teacher is proud. You go Jessica!
Thursday, March 12, 2009
Japanese Rugby!!!
Did you know Lupus means wolf in Japanese (so the internet told me) and there is a Japanese rugby team named the Toshiba Brave Lupus!
Your Fundraising Money for the ALR At Work
Genes and Genetic Pathways that Supress Lupus
Edward K. Wakeland, PhD - University of Texas Southwestern Medical Center - Dallas, Texas
Summary: Dr. Wakeland will use a new breed of lupus-prone mice to identify a gene, called Sles1, that suppresses the development of systemic autoimmunity and fatal lupus nephritis (kidney disease). The Sles1 gene does not affect normal immune functions, but specifically suppresses the development of autoimmune responses similar to those that occur in people with SLE. Dr. Wakeland and his colleagues have already localized the Sles1 gene to a very small region of the genome and will now use a variety of genetic strategies to specifically identify its exact location. They will then pinpoint the particular molecular pathways and immune mechanisms that the gene causes to suppress fatal lupus in mice.
What this study means for people with lupus: Identifying the Sles1 gene in mice and finding the molecular and cellular processes that it influences should provide new targets for lupus therapies and may lead to the development of drugs that can suppress the disease without impairing the immune system’s normal functions.
Edward K. Wakeland, PhD - University of Texas Southwestern Medical Center - Dallas, Texas
Summary: Dr. Wakeland will use a new breed of lupus-prone mice to identify a gene, called Sles1, that suppresses the development of systemic autoimmunity and fatal lupus nephritis (kidney disease). The Sles1 gene does not affect normal immune functions, but specifically suppresses the development of autoimmune responses similar to those that occur in people with SLE. Dr. Wakeland and his colleagues have already localized the Sles1 gene to a very small region of the genome and will now use a variety of genetic strategies to specifically identify its exact location. They will then pinpoint the particular molecular pathways and immune mechanisms that the gene causes to suppress fatal lupus in mice.
What this study means for people with lupus: Identifying the Sles1 gene in mice and finding the molecular and cellular processes that it influences should provide new targets for lupus therapies and may lead to the development of drugs that can suppress the disease without impairing the immune system’s normal functions.
Why We Must Find A Cure For Lupus Now
Originally posted at http://www.facebook.com/topic.php?topic=8838&post=113783&uid=44101039807#post113783
Jennifer Desmond-Hall (Lansing / East Lansing, MI)
My name is Jennifer Hall and I am 34 years old.. I was diagnosed with Lupus in 2006. However, I believe I have had it much longer. I want to find a cure for Lupus, so I can be active in my childrens lives. I have missed school plays, Christmas mornings with my children opening their gifts. Those were heartbreaking moments as I sat in my hospital room, wondering what my future held. This disease attacks anything and everything. I have walked for ALR in Detroit for the last two years. I love ALR because 100% of all money goes to research. I pray that one day, there will be a cure, not just for Lupus, but many other awful diseases.
Jennifer Desmond-Hall (Lansing / East Lansing, MI)
My name is Jennifer Hall and I am 34 years old.. I was diagnosed with Lupus in 2006. However, I believe I have had it much longer. I want to find a cure for Lupus, so I can be active in my childrens lives. I have missed school plays, Christmas mornings with my children opening their gifts. Those were heartbreaking moments as I sat in my hospital room, wondering what my future held. This disease attacks anything and everything. I have walked for ALR in Detroit for the last two years. I love ALR because 100% of all money goes to research. I pray that one day, there will be a cure, not just for Lupus, but many other awful diseases.
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