The ALR One Love, One Cause Gala 2009

Taken from the Alliance for Lupus Facebook fan page

The Alliance for Lupus Research (ALR) held its annual One Love One Cause gala celebration in honor of its tenth anniversary on November 18, 2009. The evenings co-chairs Robert Wood Johnson IV, Chairman & CEO New York Jets, Robert W. Pittman, Chairman & Founder Pilot Group, LLC, Barry M. Meyer, Chairman & CEO Warner Brothers, and Vivi Nevo, President NV Investments, Inc. came together in honor of Richard Parsons, Chairman of Board, Citigroup Inc. The master of ceremonies for the evening was Maurice Dubois, Co-Anchor, WCBS-TV. Special guests included Heidi Klum, top fashion model and host of the Project Runway Show. A highlight of the evening was the ALR’s unveiling of its new Faces of Lupus video which will be available soon to be viewed by the public.

Wow, even Heidi Klum showed up to give her support to the ALR and lupus research!

Breaking News!

Just got this from the Alliance for Lupus Research....New Study Findings Represent a Critical Step Forward for People with Lupus Everywhere

Lupus and Misconception...

What are the most common misconceptions you encounter when dealing with lupus??? I am sure 'but you don't look sick,' get's very old and very frustrating. The invisible illness at times indeed. How do you comprehensively explain your fatigue to someone who has never experienced it?

Hey Atlanta!

The ALR needs your help for the ALR Walk with Us to Cure Lupus Walkathon on Saturday, October 24th at 9 AM taking place at Highwoods Century Center. Please contact mroberts@lupusresearch .org.

Acts of Kindness

Kansas City woman donates kidney to neighbor
A woman suffering from lupus needed a new kidney. She was in luck.

Bad News Bear and Lupus...

So I posted the following on my Twitter account...

ALRtweets: 1 of the kids N Bad News Bears is calld Lupus...inappropriate? funny? offensive? a combination? wht do U think...I am curious

I found the answers interesting. Here is a sampling of responses from Twitter and Facebook...

-That is so not funny or appropriate. If they had lupus, they would not joke about it.
-its combo of both but I'm not surprised because comedies satirically poke at every1 and everything...
-I say that ANYTHING that brings awareness to Lupus- GO FOR IT! lol There's not enough out there, despite us all trying hard to get it to be! I don't think there's anything wrong with something good coming of something bad

Not having lupus, I feel like it is hard for me to say what I may or may not find offensive. The conversation however is a good one.

She May Have Lupus, But Lupus Does Not Have Her

Check out the awesome Poquette's. They continue to inspire.

Living with Lupus

Potential New Drug to Treat Lupus

A new Human Genome study provides some very ecouraging news. Check out the full article in the Wall Street Journal.

Dogs and Lupus

Dogs can have some types of lupus lupus. Who knew? Click here for the full story.

And above is a picture I found of a guy named Lupus. For real.

Former NFL Player Supports Lupus Research

Check out his truly great Eddie Kennison Foundation here.

"Walk with Us to Cure Lupus!" 5/16/09, 9AM, THEIS PARK, KC.

Matching Gifts Made Easy

Super easy new matching gift feature from the ALR. Check it out here!

Roland and Olympia the Lupus Research Supporting Felines

After Roland went outside to recruit his sister Olympia for the cause the two kittens were filthy! They were not too pleased with their bath however. Olympia can even be seen nearing Roland's ALR bracelet for comfort!

What do you wanna do with your life!? I Wanna Rock!!!

Join Chicago bands The Blissters and 1997, on Saturday, April 25 at LaSalle Power Company for a concert benefiting the ALR and ALR Chicago Walk!

7:00 pm, Doors Open
$10.00 Cover Charge, 100% Donated to the ALR and ALR Chicago Walk
Silent Auction and Raffle

Learn more about the Chicago ALR Walk here.

Roland Doing His Part!

Roland (see a few posts below to read about Roland) went outside and recruited his sister Olympia for the ALR's quest to find a cure!

The ALR on Facebook...

With YOUR help has surpassed 500 fans! Let's continue to spread the word. And as the blog title says, Together, we will find a cure!

ALR Facebook Page

Gene linked to lupus might explain gender difference in disease risk

In an international human genetic study, researchers at UT Southwestern Medical Center have identified a gene linked to the autoimmune disease lupus, and its location on the X chromosome might help explain why females are 10 times more susceptible to the disease than males.

For the full story click here

April Declared Lupus Alert Month

The Pennsylvania House of Representatives voted unanimously to approve this resolution.
Click here for full story.

And in additional news April also happens to be the month of my birth!

Debbie's Reason for Why We Need a Cure

My 30 year old daughter was diagnosed in May '09. She is a single mom of 3 boys and all of them live with me.These boys need her. She needs to watch them grow up and give her grandchildren. It tears me apart to watch her go from this vibrant young woman to someone who is in constant, daily pain. My grandsons have become used to her being on the couch not able to walk much. She can't take them to the park.They don't understand and I don't know how to tell them. All they know is the Mommy is sick again and that Mommy is in the hospital again.We NEED a cure. For everyone's sake.

Why do we need to find a cure for lupus?

Supporting Lupus Research!

This is my roommates kitten Roland. If you look closely you can see he is playing with an ALR bracelet. It is tied to a string and hangs on a rod. It is his favorite toy. Roland supports the ALR and lupus research. So should you!

Jessica's Reason for Why We Must Cure Lupus

Just read the post, My Teacher, My Hero by Jessica Pajaron over at http://walk.lupusresearch.org/site/News2?page=NewsArticle&id=11821&news_iv_ctrl=1061
and I was honestly moved. Here's a sample where Jessica is talking about her teacher who suffers from lupus:

She holds our problems as she withstands her own. She is my hero and my inspiration. She never once has put herself first.

I am sure her teacher is proud. You go Jessica!