Lupus and Misconception...

What are the most common misconceptions you encounter when dealing with lupus??? I am sure 'but you don't look sick,' get's very old and very frustrating. The invisible illness at times indeed. How do you comprehensively explain your fatigue to someone who has never experienced it?

Hey Atlanta!

The ALR needs your help for the ALR Walk with Us to Cure Lupus Walkathon on Saturday, October 24th at 9 AM taking place at Highwoods Century Center. Please contact mroberts@lupusresearch .org.

Faces of Lupus

Soooo...the Alliance for Lupus research is working on a new Faces of Lupus video to be rolled out in three parts via the web. With the great success of the last one I think we can expect something really special. If you never checked out the first one click here to view.

Gotta Love Chicago's Own The Blissters

Rockin out for a cure...

Bad News Bear and Lupus...

So I posted the following on my Twitter account...

ALRtweets: 1 of the kids N Bad News Bears is calld Lupus...inappropriate? funny? offensive? a combination? wht do U think...I am curious

I found the answers interesting. Here is a sampling of responses from Twitter and Facebook...

-That is so not funny or appropriate. If they had lupus, they would not joke about it.
-its combo of both but I'm not surprised because comedies satirically poke at every1 and everything...
-I say that ANYTHING that brings awareness to Lupus- GO FOR IT! lol There's not enough out there, despite us all trying hard to get it to be! I don't think there's anything wrong with something good coming of something bad

Not having lupus, I feel like it is hard for me to say what I may or may not find offensive. The conversation however is a good one.

Potential New Drug to Treat Lupus

A new Human Genome study provides some very ecouraging news. Check out the full article in the Wall Street Journal.

Geoff Thomas Rides for a Cure!

Michelle rocks. And so does Geoff. So it is not surprising when you put the two together you get a great read. Check out Michelle's blog on Geofff and his bike ride for lupus here.

Teen 'has lupus, but lupus doesn't have' teen

The Poquette family from Connecticut simply put, ROCK Check out a story on Erika here

RIP Joe. We Will Miss You.

Putting politics aside I think we can all agree this is a tragedy. Please take the time to watch this video and see one of many whom we all fight for. Thank you to Kaylee Van Hoose Perkins fro bringing this to my attention. For more please visit the Alliance for Lupus research on Facebook here.

Why NEFE MARTIN Walks for the ALR

"I walk for lupus because it has affected my life drastically. My sister past away from Lupus Septmeber 3, 2007. She was 28 years old. The youngest person in the dialysis center. She was fighting her battle with Lupus for a 7 years, and it was just a little stronger than her. She is gone, She left 2 small children age 6 and 7 behind, and my mother ... Read Moreis heartbroken over losing her. When she past i wanted to die too. So I plan on fighting her battle for her until my demise. I will do the ALR walk in NYC every October. Rain or Shine. I dont need to be featured on here or myspace or anything. I think the people are most deserving are the people actually living with Lupus. Just wanted you to know that you dont have to have Lupus to be affected by it"

New Blog Alert

Awesome!


http://http://www.facebook.com/ext/share.php?sid=121771829288&h=Yr5mx&u=rbcJB&ref=nf

Why Do You Walk for the ALR???

Sue Scarborough Myrick says:

I walk for Lupus because after suffering for most of my life and being told it is all in my head I was diagnosed with Lupus. I want to raise awareness and help to find a cure to help prevent other families from going through what my family has gone through! My team is Sue's Sweeties Against Lupus and we are walking in Boston on June 13.

What is Lupus?

Here is a very informative site that really goes into depth about lupus and all it entails. Check it out here.

Dogs and Lupus

Dogs can have some types of lupus lupus. Who knew? Click here for the full story.

And above is a picture I found of a guy named Lupus. For real.

Former NFL Player Supports Lupus Research

Check out his truly great Eddie Kennison Foundation here.

"Walk with Us to Cure Lupus!" 5/16/09, 9AM, THEIS PARK, KC.

News Anchor Brenda Blackmon Supports the ALR

This is just awesome. News anchor Branda Blackmon talks about lupus, the ALR and the importance of the simple task of asking for help. Click here for the full story.

Matching Gifts Made Easy

Super easy new matching gift feature from the ALR. Check it out here!

Roland and Olympia the Lupus Research Supporting Felines

After Roland went outside to recruit his sister Olympia for the cause the two kittens were filthy! They were not too pleased with their bath however. Olympia can even be seen nearing Roland's ALR bracelet for comfort!

April Declared Lupus Alert Month

The Pennsylvania House of Representatives voted unanimously to approve this resolution.
Click here for full story.

And in additional news April also happens to be the month of my birth!

Cure Lupus Now

Check out this great post by Joyce to the question posed at http://www.facebook.com/topic.php?topic=8838&post=113527&uid=44101039807#post113527

"Why is it so important to you that we find a cure to lupus now"

Hi! I'm Joy and have had SLE Lupus since 1991 and I want a cure for Lupus so that I am able to help others when they need it and not have to cancel because I am sick.I have been affected by Lupus with severe fatigue,joint pain,pleurisy and lung involvement, some slight kidney involvement and CNS with lots of pain. If there was a cure I could go hiking which I loved.It is physically and emotionally a total drain of oneself. and we all get very discouraged but we are tough and will keep fighting the disease. We are fighters of Lupus but even fighters get weary. Please help us cure this disease. My dream is to be able to help others more and be able to completely clean my house without having to sleep like Rip Van Winkle!